What Life Is Like Living with OI: Osteogenesis Imperfecta, Brittle Bones | Patricia Minor

book: What Life Is Like Living with OI: Osteogenesis Imperfecta, Brittle Bones | Patricia Minor

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What Life Is Like ...

	What Life Is Like Living with OI: Osteogenesis Imperfecta, Brittle Bones Patricia Minor PublishAmerica, 2006 - 59 pages average customer review:based on 1 review view larger image
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I was born in 1956 in Kansas City, Kansas, at KU Medical Center. I have had around 100 broken bones and most of them were from just turning or moving the wrong way. You see, with OI (osteogenesis imperfecta, brittle bones), it does not take much at all to break a bone. I was raised in the greater Kansas City area and eventually ended up just southeast of Harrisonville, Missouri, in a small town called Gunn City, where I reside at my home on Zook Street with my husband and our two dogs and my mother. I have a twenty-nine-year-old son who also has OI and a stepson and daughter-in-law who are the best, and an adopted son and his wife and two grandchildren. I might have an unpleasant bone disorder, but I have a great family that helps make up for it. I hope you enjoy reading my book, and I hope it helps the public and the medical field to understand what OI is and to help them to be able to identify the disorder when a child is born with it, and I hope individuals who already have it to get the right care that they need. May God bless you all and thank you for your support.

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OI Like Me

Being a person with OI I can relate to a lot of the things that Patricia Minor went through. I found this book because I began writing one of my own and was curious if someone else had already written something about OI. I was excited to find this one. She makes interesting points regarding the medical field being quite ignorant about OI. I like the fact that she gives tips on how to care for a loved one who has OI. She even informs those with OI of the various medical treatments available. This information was rather enlightening to me. Also, I think it's great that she has overcome many obstacles and gives God the glory for it.

However, I am deeply disappointed with the format of the book. The grammar is poor, some sentences makes the reader have to guess as to what the author is trying to say. There were many typos and an order of an event was off. For instance, the author indicates on page 36 that her dad dies. However, on page 45 her dad comes to the scene of the accident just when the paramedics arrive. I don't totally blame the author since it is the publishing company, Publish America, who is responsible for editing. It appears that they didn't even bother to read the book.

Nevertheless, I feel that this book could have been great if more effort and better details were put into it. I truly applaud Patricia Minor's efforts for writing this book because it is a plus for people with OI, as well as the disability community as a whole.

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