The Two Kinds of Decay: A Memoir | Sarah Manguso

The Two Kinds of Decay: A Memoir | Sarah Manguso | A Journey Through Hell with Humor

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The Two Kinds of D...

	The Two Kinds of Decay: A Memoir Sarah Manguso Farrar, Straus and Giroux, 2008 - 192 pages average customer review:based on 5 reviews view larger image
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highly recommended

The events that began in 1995 might keep happening to me as long as things can happen to me. Think of deep space, through which heavenly bodies fly forever. They fly until they change into new forms, simpler forms, with ever fewer qualities and increasingly beautiful names.

There are names for things in spacetime that are nothing, for things that are less than nothing. White dwarfs, red giants, black holes, singularities.

But even then, in their less-than-nothing state, they keep happening.

At twenty-one, just starting to comprehend the puzzles of adulthood, Sarah Manguso was faced with another: a wildly unpredictable disease that appeared suddenly and tore through her twenties, vanishing and then returning, paralyzing her for weeks at a time, programming her first to expect nothing from life and then, furiously, to expect everything. In this captivating story, Manguso recalls her nine-year struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, the deaths of friends and strangers, addiction, depression, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace and self-awareness, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

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An Illness Once Removed

Ms. Manguso has written a medically graphic but affecting account of her battle with an auto-immune disease. Written in brief paragraphs with short chapters, the author is clealy recalling a bad dream that she rather not recall. A poet, her writing is lyrical and conversational. Once the reader starts her story, you will not put it down and it is easily read in one sitting. But it is a book that you will come back to.

A Journey Through Hell with Humor

This book is a compelling read. It's a testimony to one woman's resiliance when the terrible thing happens to her, not to some stranger.

Manguso has the courage to revisit her devastating illness, and the wisdom to find the ironies, the lessons, and even the humor in her experience.

Through her sharing of the story of those terrifying sick years, she lets us see the indomitable spirit and the sense of humor that enabled her to survive them and heal.

She juxtaposes pictures of illness against the lyrical beauty of her writing. I find new treasures whenever I reread it.

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A Life Interrupted

An elegant little prose narrative of a rare fatal disease, told by the patient, a poet, who has been in remission for 7 years, and who seems to be a very bright young woman with a clear knack for writing, and for understanding. I bought this book entirely because my hero Garrison Kieller reported in a column that he was reading it. Then I found that the rare autoimmune disease described was almost the same as the one my wife suffered through 5 years ago - now 2 years in remission. The treatments have improved significantly in the short time between, and Sarah's were much more experimental. Written in almost poetic style, with short chapters and short sentences of well chosen word, spaced for effect, this worthwhile little book is a special sharing of the life of an extraordinary young woman, told with humor and candor at a time of sadness, fear, pain, love, and learning.

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Fantastic memoir; beautiful writing

This is a short book about Sarah Manguso's experience with a strange autoimmune illness, which began suddenly during her freshman year at Harvard. You could easily read it in an afternoon, but it might take longer since there are so many beautiful passages to go back and read again.

She has said that she intentionally did not write about the disease after it began; it must have been too difficult. In reading this book, I got the impression that as she wrote, she was actively rediscovering and redefining her illness and what her life became in the wake of being sick.

Ms. Manguso is an award-winning poet, and the fantastic writing alone is worth the price of admission. The chapters are often only a page or two, the paragraphs only a few lines. The writing is simple and insightful--whether she is discussing a mundane detail, humiliating experience, or a scientific technicality. She is capable of being heartbreaking in one sentence and uplifting in the next.

I should admit that I am a medical student (final year), so perhaps I got a double benefit. Her description of illness is fantastic. If I had learned about this disease from a textbook, it would have been just one of hundreds of cold facts in my brain. But from her description, I began to imagine a mysterious illness that went beyond mere words. I am sure that I now have a better understanding of patients with long-term disease. Moreover, for anyone who has to deal with illness, Sarah Manguso has likely put into words some of the complicated, frustrating feelings that accompany repeat trips to the doctor and hospital.

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A painfully, poignantly, poetic, perfect prescription for pity-party participants

Sarah Manguso, afflicted at age twenty-one (in 1995) with a Guillain-Barre-like syndrome called CIDP, wrote The Two Kinds of Decay after seven years of remission from her illness. (p 2) "For seven years I tried not to remember much because there was too much to remember, and I didn't want to fall any further behind with the events in my life." Of the disease, the reader learns (p 19) "The condition may resolve spontaneously, relapse and remiss indefinitely, or progress and terminate in death." Talk about an uncertain future. In this succinct, simply-written story of a life, Ms. Manguso tells all: of her initial symptoms (numbness in her feet); treatment (and mis) including hours spent undergoing apheresis (p 10) "the process of separating blood into its components" and the painful procedure of having a permanent line surgically implanted in her chest (the apparatus shown on the cover); interactions with hospital staff, friends, family and complete strangers; the effects of the various treatments on her body; and just plain living with a rare, rotten, debilitating condition. Of a doctor, who tries to quantify her high level of suffering, she writes (p 83, 84) "he didn't understand yet that suffering, however much and whatever type, shrinks or swells to fit the size and shape of a life." Near the end of the book she shares (p 171) "Having spent my twenties expecting to die, I turned thirty and arrived in the afterlife with nothing left to do." She's done a lot since then, notably: running, writing, living and loving. She ends with a line explaining the title (I won't spoil it) and shares what she learned from years of agony, (p 183) "This is suffering's lesson: pay attention." The nine sentences that follow are equally excellent. Also good: Lucky Man by Michael J. Fox, Mountain Beyond Mountains by Tracy Kidder and There is No Me Without You by Melissa Fay Greene.

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